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Bruce Willis’ children saw his decline before he was diagnosed with dementia
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Bruce Willis’ children saw his decline before he was diagnosed with dementia

Emma Heming gives more insight into Bruce Willis’ battle with dementia.

The “Die Hard” actor’s wife opened up about her husband’s “deteriorating” health and how she looks after the couple’s children, Mabel, 12, in an interview with Town & Country for the magazine’s November 2024 Philanthropy issue. and Evelyn (10), helped to understand her father’s illness.

“His disease is misdiagnosed, it’s overlooked, it’s misunderstood, so it was critically important for me to finally get a diagnosis so I could learn what frontotemporal dementia is and to educate our children,” Heming said. 46, in the interview published on Tuesday.

Emma Heming for Town & Country. city ​​and country
Emma Heming and Bruce Willis. @emmahemingwillis

“I never tried to sugarcoat anything for them,” the model and actress added. “They grew up watching the decline of Bruce over the years. I’m not trying to protect them from that.”

In addition to the two children he shares with Heming, Willis, 69, has three adult daughters — Rumer, 36, Scout, 33, and Tallulah, 30 — with ex-wife Demi Moore.

Bruce Willis with his family. demimoore/Instagram

In February 2023, the blended family came together to announce Willis’ diagnosis of frontotemporal dementia. They continue to be a unit as they help Willis in his battle for health.

Emma Heming and Bruce Willis. Instagram/demimoore

“The family respects the way I look after him. They really support me. When I need to vent, when I need to cry, when I need to be angry — because all of that can happen and it’s OK to have those feelings — they’re always there to listen,” Heming said.

“I’m so grateful that we are this blended family,” she added. “They are very supportive, very loving and very helpful, and a lot of people don’t have that.”

Emma Heming on the cover of Town & Country’s November 2024 Philanthropy issue. city ​​and country

Willis was originally diagnosed with aphasia in 2022, forcing him to retire from acting before it was revealed that he had frontotemporal dementia.

Heming said that her famous husband’s health problems “started with speech” and that the stutter he had since childhood partially masked the illness.

Emma Heming for Town & Country. city ​​and country

“Bruce always had a stutter, but he was good at covering it up,” she explained. “When his speech started to change, it seemed (so) it was just part of a stutter, it was just Bruce. I never in a million years thought it would be a form of dementia in someone so young.”

Bruce Willis in a birthday post from March 2023. demimoore/Instagram

Heming is now an advocate for frontotemporal dementia awareness and will receive the Susan Newhouse & Si Newhouse Award of Hope from the Association for Frontotemporal Degeneration (AFTD) next year.

“I’m a rule-following guy, and Bruce is the opposite of that,” she said as she shared how she’s evolved because of Willis’ diagnosis.

Emma Heming and Bruce Willis. Instagram/Bruce Willis

“I learned so much from him about using your voice and doing good,” Heming continued. “This is bigger than me, and as Bruce would say, ‘You’ve got to get out of your own way, Emma.’ That’s what I’m really trying to do – to be brave and courageous and do things I wasn’t before.”

Bruce Willis with his daughters Rumer, Scout and Tallulah.

Willis’ family members have gradually provided updates on his health since his diagnosis. Moore, who was married to the “Pulp Fiction” star from 1987 to 2000, said at the Hamptons International Film Festival earlier this month that Willis was “stable.”

In September, Tallulah shared on Today: “He’s stable, which is good in this situation. It is difficult. There are painful days but there is so much love. And it really showed me that I shouldn’t take any moment for granted and I really believe that we would be best friends. I think he’s very proud of me.”

Bruce Willis with Demi Moore and one of her daughters. Instagram/@demimoore

Rumer told The Post in May how much her family appreciated the support they received while caring for Willis.

“What’s so beautiful is the amount of people who reach out and just come up to me and say how much they love my dad or what an impact they are, or just say that they’re praying for us,” said she.

“I’m just deeply grateful for the love that’s been shown to us,” Rumer added.

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